You are viewing wynnsfolly

Previous 20

Mar. 14th, 2015

darlin

My tweets

Tags:

Jan. 31st, 2015

darlin

My tweets

Tags:

Jan. 1st, 2015

dead branch

tmi round 2

2nd treatment was last week. went a lot quicker since the office was supposed to close at noon. it still took until about 12:45 for us to be cleared out.
I took nausea meds early and often, and bustled around quite a bit on Thursday, then mom drove down on Friday. She brought Panera, and Friday I got into the lemons DH had harvested this year for a batch of lemon curd.
the one Meyer lemon made it extra mellow. My taste-buds haven't been affected as much this time, so I've been able to eat pretty much everything served.
Pain wasn't as bad over the weekend, because I took pain pills. made DH take me to work on Monday, but ventured to drive in myself Tuesday and Wednesday. I slept each night until I was ready to get around. Bloated up the first of the week, and purged out on Wednesday. Lazed around today, have to be in town early tomorrow for a mammogram and to take care of things at the office.
I wore wigs the three days of work, just not real thrilled with the idea yet. Kind of like LiLei when she's in a mood. 2012-01-23_18-58-55_562
Tags:

Dec. 21st, 2014

darlin

My tweets

Tags:

Dec. 20th, 2014

dead branch

tmi hair edition

So the past week I went from having random loose follicles to a full-on molt in the shower. Friday morning, the cat thought a mouse had gotten into the shower drain.
We had retired the previous head clippers I had used on DH, so I asked him to pick up a new one when he went to town. Last night he used them on me. With the longest comb attached I'm currently at about an inch with the thin spots visible.
Carol's daughter brought me two wigs during the week. I'll have to practice wearing them but they will fit better now that I've not got longer movable strands underneath.
I also have a couple more wigs and supplies on order that should be here by the new year. Had to select one cap already to have set aside for chores.

Dec. 19th, 2014

darlin

My tweets

  • Thu, 18:30: Dangerously close to accomplishing something today.
Tags:

Dec. 16th, 2014

darlin

My tweets

Tags:

Dec. 15th, 2014

dead branch

tmi

Looks like I can quit worrying about the impending "hair event"

Dec. 12th, 2014

darlin

books read 2014

A Marked Man - Barbara Hamilton (Hambly)
Endless Night - Agatha Christie
Have Stakes Will Travel - Faith Hunter
Cat Tales - Faith Hunter
Black Arts - Faith Hunter
Halfway to the Grave - Jeaniene Frost
After the Golden Age - Carrie Vaughn
Sarah Plain & Tall - Patricia MacLachlan
Book of Iron - Elizabeth Bear
Bone & Jewel Creatures - Elizabeth Bear
Fledgling - Sharon Lee & Steve Miller
Shadow Unit 1,2,3,4,5,6,7,8,9,10,11,12,13 - E Bull, E Bear, etc
Redoubt, Steadfast - Mercedes Lackey
Man-Kzin Wars XIV - Larry Niven
Cinder - Marissa Meyer
Time for Tea, Time and Fevers - Erica H. Smith
The Labyrinth Gate - Kate Elliot
Nine Goblins - T Kingfisher
Indigo Springs - A.M. Dellamonica
Blue Magic - A.M. Dellamonica
Broken Homes - Ben Aaronovitch
Carousel Sun - Sharon Lee
Medieval Underpants and Other Blunders - Susanne Alleyn
Clean Sweep - Ilona Andrews
Night Broken - Patricia Briggs
And Other Stories - Will Shetterly, Emma Bull
Tale of the Five Omnibus - Diane Duane
Half-Off Ragnorak - Seanan McGuire
Just One Damned Thing After Another - Jodi Taylor
A Symphony of Echoes - Jodi Taylor
Southern Gods - John Hornor Jacobs
A Passage of Stars - Kate Elliot
To Say Nothing of the Dog - Connie Willis
Swan's Braid - Tanya Huff
The Steerswoman - Rosemary Kirstein
The Outskirter's Secret - Rosemary Kirstein
Death of a Gossip - M C Beaton
Death of a Cad, Death of a Kingfisher- M C Beaton
The Grand Sophy - Georgette Heyer
A Quiet Gentleman - Georgette Heyer
Behold Here's Poison - Georgette Heyer
Venetia - Georgette Heyer
Foundling, Corinthian, Cousin Kate, Friday's Child, False Colours, Black Sheep & more by Georgette Heyer
Six-Gun Snow White - Catherynne M Valente
Lock In - John Scalzi
Eternal Sky trilogy, Range of Ghosts, Shattered Pillars, Steles of the Sky - Elizabeth Bear
Crewel - Gennifer Albin
Hunger Games - Suzanne Collins
Parasite - Mira Grant
Ancillary Justice - Ann Leckie
Horns - Joe Hill
Future Falls - Tanya Huff
California Bones - Greg Eekhout
Last Scene Dead - Charlaine Harris
Shakespeare's Champion - Charlaine Harris
Midnight Crossroads -Charlaine Harris
Tags:

Dec. 9th, 2014

darlin

tmi

Monday wobbly with scattered mind. Stronger by end of day at work.
Leg cramps last night. Gut loose within my normal range.random bouts of shaky.
Tags:

Dec. 7th, 2014

dead branch

tmi

Better, pain in joints less. Sore & dizzy. Need to concentrate on fluids. Bathroom about normal for me. IIIii
darlin

My tweets

Tags:

Dec. 6th, 2014

davey

fyi on the tmi

Im beginning treatment and have been told to track how it goes.
Im trying not to post all over but it may take too much brain to prevent leakage into my public channels.
If you want to it will not hurt my feelings if you take me off of anywhere i might show up. I am just warning you that until this is over im in the whiny zone.
Thanks
Tags:
dead branch

TMI

Rough night. Throat not so sore. Real pain in joints, probably solid 7. Gut motility weird. Slow with mucus. In a normal person gut would be normal. Every joint swollen stiff. If this is what rheumatoid athritis feels like i dont know how anyone deals with it.
Spread my normal two naprosyn out over day, plus tylenol.
Tags:

Dec. 5th, 2014

dead branch

tmi

Headache left side. Sore throat and sensitive mouth, pizza spices were an unpleasant surprise.
joint pain has arrived about 4:30

Dec. 4th, 2014

dead branch

tmi details as released to office staffing

Yesterday I began treatment to prevent a re-manifestation of the issues for which I had surgery in September. Since they took out where it showed up in the first place, it would counts as a new condition if it spreads anywhere.

Barring side-effects, I’ll be returning for treatment every three weeks five more times, then dealing with the effects for some period of time before things return to “normal” whatever that is.

There are a number of things the medical profession doesn’t really cover until they’ve got you plugged in after waiting for two hours with no way to back out.
1. I am officially immunity suppressed for at least the next six months. My normal personal space just got a lot bigger, and you will find a variety of aids in maintaining that on the table as you enter my office. Note to office suppliers: might be good to stock up on Purell and disinfectant hand wipes. Chlorine and alcohol for the win.
2. Each treatment begins with steroids, which will be in for about 48 hours after treatment. This makes Wednesday’s good because the side effects should be easier for two days, then really hit over the weekend. This is your official steroid warning. If you don’t know what that means, ask Diane, Dane or Jason, they’ve been exposed already. Interesting side-effect, I feel like I’m working really hard, but so easily distract---squirrel!
3. Next week, the fatigue and more interesting side-effects kick in. not to mention the generous use of the anti-nausea meds and their soporifics. So, sleepy, slow, and frequent bathroom issues. I’ll get here when I can and work til I can’t. I have a phone whose battery is at the end of its lifecycle, so while I will try to keep up, replies may take a while.
4. Don’t dump everything on Carol, especially not behind my back. She’ll try to do it all, but if I can guide her it will save time in the end. She’s got enough on her plate without having to re-invent the wheels in our special processes. And I’m dumping some extras on her, that will be a priority over the things you might bring to her. Give me a shot at triage first.
5. What I should or can eat will change drastically as well. I’m calling this an opportunity for planned weight loss, as long as can keep fluids & electrolytes up. Do not let this alarm you. Unless I get hungry enough to go after live prey.
6. They have promised hair loss. Sadly, no promises were made that the hair I’d like to lose will go first or wait til after all the hair I’d like to keep is gone. I have some hair coverings, and wigs but plan on maybe a couple more wigs for the short term. Taking votes, curly red wig or silver white straight hair appropriate to my age? Should I go straight up Native American?
7. I appreciate all the good thoughts and well wishes I’ve received. All the treatment to date has gone really well, in large part I’m sure, to strength you’ve given me.
8. I’m supposed to keep a record of reactions and conditions for this round of treatment. The most effective way is on my Livejournal blog. If you see a tweet show up from me labeled TMI with a link to my journal, don’t click it unless you really want TMI. For two years, I couldn’t get it to post from my journal to twitter, and it fixed itself this first time I made notes.
9. If your body tells you something is wrong, please listen to it, and make your doctor listen too. The main question I’m getting is why we caught this as early as we did. The annual checkup early this year, forced on me by my husband, led to the conversation for a referral to a specialist, who did tests and sent me to a surgical specialist. The basic symptoms could still be explained under the heading of “I’m feeling old, tired and fat”. I’ve since discovered that some of the issues weren’t just in my head or included in the above. Except maybe the old.
10. Also steroids and blood sugar levels do not play well. The war on candy in my vicinity has begun. It could get ugly.
dead branch

tmi

Thursday morning.
slept due to anti-nausea meds
have very dry mouth today.
have already gone through a quart of liquid.
1 steroid aided temper tantrum.
developing sore throat in afternoon.
Tags:
dead branch

My tweets

Tags:

Dec. 3rd, 2014

dead branch

tmi

Took zofran @7
Ate supper. Now have rumbly tummy at 8:30
dead branch

tmi records

First day preceded by bad day at work, even though i didn't take the steroids until i ate supper, i acted like i'd had them all day.
Slept good but skipped caffiene and still had rapid heartbeat & high blood sugar at labs. All else seemed to be working.
Slight headache all day.
Arrived at ten probably here til six.
Need to call Greer's office for checkup date after i figure out when rx expires

Previous 20